1. Unwelcome News
Three days before
Thanksgiving, as I sat in a tiny room awaiting my turn to be examined, the
entire situation seemed surreal. The padded chairs had upholstered seats with
cameo backs in a matching floral print. The gilt-framed prints on the pastel
colored walls were pink florals and there were artificial pink flowers in vases
on the side table. The magazines on the table had a feminine bent; even the
cover of Redbook was pink. It was as if I had entered a world turned genteel,
soft and pink. There were no signs of virility; this was not a space designed
for men. An uneasy feeling crept into my bones and a keen sense of awkwardness
overwhelmed me. The sign on the wall said, “Please Remove Bra.” I tried not to
let my mind go there. Why was I here, so obviously out of my element and out of
synch with this environment?
After ten minutes,
the technician came to fetch me. She led me through a labyrinth of halls
adorned with more floral prints and after multiple turns we reached the testing
room. “Step in here please”, she said as she stepped aside. I walked into the
room and stared at the unfamiliar piece of equipment. I didn’t know whether to
walk up beside it, stand in front of it or sit on it. “Take off your shirt
please” she asked, with a little hesitancy. I did, and she looked at me as
awkwardly as I was feeling at the moment. I’m over 65 years old, and my body
bears the results of multiple surgeries. With my three-week old beard and hairy
chest, I don’t think I fit the mold of her normal clientele.
She quickly
recovered and instructed me to step forward and face the odd looking device.
She had me lean forward and then squeezed the sides of the device around my
breast. When she had the precise angle captured, she stepped behind a screen
and said, “Don’t breath”. I heard the machine wheeze and click and then she
advised, “Breath”. After a couple of additional poses and clicks, she said,
“O.K. that’s it, I’ll take you back to your room now.” I suppose that was so I
could put my bra back on. I had completed my first mammogram.
After another 10
minutes a nurse’s aide came and led me to the Radiologist’s office for a review
of the mammogram and for an ultrasound of the surrounding area. As the nurse
prepared me for the ultrasound, I said, “I bet you don’t get many patients with
hair on their chest”. A wry grin appeared on her lips as she softly replied,
“You’d be surprised”. Lord help me, I
wasn’t prepared for that answer, “TMI”, I said and quickly changed the subject.
The doctor soon appeared and after scanning me with the ultrasound, she told me
that the tumor was not large and it was smooth shaped. “With men” she
explained, “that doesn’t mean a lot. Men don’t follow the normal patterns,
we’ll have to do a biopsy and send it to pathology to determine if it is
malignant”. She performed the biopsy with a needle extraction process and
pronounced that the outcome would not be available until the next day. I
arranged to return the following day at 11:00am so my wife could join me for
the results.
Four days earlier I
had accidently bumped my chest with my hand and discovered the lump just under
the skin on my left breast. It caused me concern because I have a family
history of breast cancer in the females on my mother’s side. My general
physician referred me for the imaging and it took a couple of days to set up
the test. Now, I would find out the results on the following day. No need to
alert the kids and grand kids until I knew something definite. As I left the
clinic, I noticed that even the Christmas tree in the lobby had a pink bow
topping the strands of white pearl and pink ribbon. I felt as if I had just
walked out of a bad dream, because men don’t get breast cancer.
At 11:00 the next
morning, Cheryl and I sat in the doctor’s consultation room, expecting the
worst but hoping for the best. The radiologist calmly sat in front of us,
looked me straight in the eyes, and matter-of-factly declared, “It is
malignant.” It was a ductal carcinoma
that may or may not have metastasized to other organs in my body. The bad dream
had transitioned into a nightmare. She
then described the most likely scenario that would lead to the removal of the
tumor, the breast tissue and the sentinel lymph nodes. I was light-headed as I
realized that the word ‘benign’ had simply not been uttered. As I floated back
to reality, she was saying, “I’ll set up an appointment with a surgeon and he
will determine what the best course of action will be.” She was a consummate
professional and I thought how she must hate her job at times like these.
Surely she has to deliver that message several times a day. God bless her. This
was Tuesday before Thanksgiving and the surgeon was not available until the
following week. We thanked her for her candor and I drifted out to spend an
anxious holiday.
I struggled to
determine what I had to be thankful for. I called all my children and my
brothers to pass on the dismal projections and I held back the tears and
despair that threatened to overwhelm me. I looked on the web and I was
astonished to discover that one out of every thousand breast cancers are
discovered in men. How unfortunate that I managed to be one of them. As the
week progressed, I prayed that God would give me the grace and dignity to
accept whatever the new day brought. Somewhere in the midst of the self pity
and fear, the realization came to me that God, in His providence, has always
watched over me and I had much to be thankful for. My family and all those I
love are something to be cherished, even if everything else is wrong.
On my Facebook page
on Thanksgiving Day, I wrote:
Psalm 118:24 "This is the
day which the Lord has made, Let us rejoice and be glad in it"
There are times when I forget to be thankful for the real things in my life. I am thankful for life itself and the wonderful people that God has put in my life. These are the real things, that mean more than anything else. Thank you Lord and bless all those I love on this day of thanksgiving. I am grateful for each one of them.
There are times when I forget to be thankful for the real things in my life. I am thankful for life itself and the wonderful people that God has put in my life. These are the real things, that mean more than anything else. Thank you Lord and bless all those I love on this day of thanksgiving. I am grateful for each one of them.
On Thanksgiving
day, my brother sent me the following Email:
“You have been on my mind
most of the day so when Kim asked me in the "family gathering" around
me what I had to be thankful of, you are the first thing I thought of.
While pondering the question, I wondered how I could be thankful of the
draconian news you delivered. All I could think of was "if you have
to have cancer, it's good to have the kind you have." I've spent
some time on the internet trying to understand what you have and only have a
small sense of what you must be thinking and not looking forward to. But
then, I guess you are looking forward to getting rid of what you have and go on
about your life.
And that's what I'm
thankful of this year, that you are going to have many more years with your
family and friends and doing the things you like to do. It does bring the
subject of trying to get together more often to the forefront of my mind
though. That's my goal for the rest of my life, to spend as much time as
I can with you and Ted and the other members of my family.
I love you Brother and
always will,
Mike”
On Sunday after
Thanksgiving, as we sat in church, I tried to concentrate, but my mind kept
wandering to the uncertainties of the future. I carried a large black Bible
with me that day; one that I rarely take to worship service. When the pastor
asked for all with a special need to come to the front, Cheryl and I held
hands, walked to the front and prayed together at the altar. During the sermon
that followed, my mind wandered again. While holding the Bible in my lap, it
just popped open to where I had placed a copy of a card that I had sent to a
friend about a year earlier. It was a self-created card that I had written the
verse and inserted my own pictures. When I read my own words of comfort that I
had written for my friend, the message came back at me like a golden
boom-a-rang.
The surgeon was
young, hopefully older than he looked, but he spoke with clear authority on the
subject and he obviously had a wealth of experience in performing these types
of procedures. He confirmed what the radiologist had predicted the week before
and he described in great detail what the process would be. We talked about
heredity testing for the genes that my mother’s family could have passed down
to me, and he recommended having my DNA tested to determine if I had inherited
the mutated genes that could cause cancer. My daughter, Mendy, listened with
rapt attention as he described the testing process. It was Monday after
Thanksgiving and he advised that a team of doctors including himself, medical
oncologists and radiology oncologists would counsel on Wednesday to determine
my plan of treatment.
2. Hope
My wife, my
daughter and I left the room with apprehension and yet, full of hope. I thought
of Mendy’s email address, “faith.hope.love”, and as always, I felt the
assurance that the grace of God would surely calm my fears. We all must face
our own dragons and slay them with the power that only comes from our deep and
unwavering faith. There is no other fountain to drink from, hope eternal
springs from trusting in a power greater than ourselves. Again I prayed that
God would give me the grace and dignity to accept whatever the new day might
bring.
The surgeon’s
office called Wednesday afternoon, “Your procedure is scheduled for next
Tuesday, December 6th. The hospital will be calling you with
instructions later today.” And they did. The genetic counseling clinic called
and I made an appointment for the Friday before the surgery.
I was thinking that
I could probably blame my mother and my grandmother. Not really; they didn’t
intentionally do anything to me. They must have innocently passed on a gene
that traveled through the succeeding generations until I inherited it. A gene
that bears a great burden to all who receive it. My grandmother, mother and all
three of her sisters died from breast cancer. I explained all of these facts as
the genetic counselor drew out my family tree with squares for the males and
circles for the females. As she filled in the circles to indicate cancer, it
became apparent that it was all on my mothers side of the family. She arranged
for me to leave a blood sample in the clinic next door and then advised that
the results would take a week or two for the DNA test to come back from the lab
in Salt Lake City. By then, the surgical procedure would be over and I would
know if the cancer had spread in my body.
Over the weekend I
tried to stay busy; both my brothers were flying in, so I helped my wife with
chores around the house. On Monday, Ted arrived as I was finishing up with the
pre-check-in routine at the hospital. We spent an afternoon nostalgically
talking of childhood memories and when Mike arrived late in the evening, we all
three sat around talking into the wee hours of the morning. I wasn’t sleepy,
and we all talked of good times from the past, as only brothers can do. At
3:00am I retired for a night of troubled restlessness. I dreamed of Mother, I
could see her and hear her, but I had to speak to her through a strange hand
held device. No doubt, my anxieties manifested themselves in the form of one
closely related to my circumstances. I had a calmness as she said things which
I do not remember, and yet, their effect was soothing to my troubled spirit.
When I awoke, I slowly began the process of preparation for my surgery. No food
or drink since midnight and now a pre-surgery antiseptic shower. This is always
the worst time, but it passes quickly. We made a quick ride to the hospital and
I then changed into the infamous hospital gown. I can’t think of anything more
undignified than an open backed hospital gown.
Friends and family
filtered in and soon I was surrounded by those who love me; not a bad feeling
when you are about to drop off the face of the earth for a few hours, and you
don’t know if you are coming back. You don’t overtly think about it, but that
‘hope’ thing is always there, always standing tall in the shadows, saying to
you “It’s going to be OK, I’ve got you covered, don’t worry”.
God’s spirit moves in mysterious ways. The nurse advised all
the visitors that the show was about to start and they needed to say their
goodbyes. My associate pastor from my church said a prayer and then my
brother-in-law who is a hospice chaplin worded a special prayer for me and my
family. “John”, I said, “I don’t mind you praying for me, just remember that
I’m not one of your clients today”.
I kissed my bride
goodbye and told her I love her, and I would see her soon.
Mr. ‘Hope’ was there, quietly bolstering my spirits, making
sure that I knew that whatever happens, “It’s going to be OK”. They wheeled me
into the pre-op and pulled the shower curtains around my gurney. Every nurse
and doctor who spoke to me asked for my birth date. I began to feel as if it
were a sanity test to insure that I knew who I was. I met the anesthesiologist,
just before he knocked me out. Time flys in these circumstances. An hour passed
in an instant. A nurse appeared with some strange devices and told the head
nurse that she was ready to inject the radioactive dye into my nipple. “Don’t
worry”, she said, “I’ll apply some topical anesthesia before I inject it, now
what is your birth date?” The surgeon appeared and asked the head nurse if I
had been injected yet. I thought, “She’s standing right there, why don’t you
ask her”. As I turned in her direction,
there was no one there and I heard the head nurse tell my surgeon, “Yes, she
finished several minutes ago.” Time flys; you’d think I would have remembered
that one. That was my last memory in pre-op, I don’t even know when they
inserted the anesthesia into my IV.
I awoke in the same
room but on an opposite wall. The smiling face said, “Hey, welcome back”. In
the back of my head, Mr ‘Hope’ said, “I told you so”. I so admire these folk
who care for you when you check in on your return flight, they don’t get enough
credit for the good job they do. The female patient in the next stall, whose
flight had returned shortly after me, loudly proclaimed, “Where am I, what have
they done to me? Did they operate on my knee? I didn’t give him permission to
do that. Why am I here? Oh my God, I didn’t give him permission to do this.
Somebody is going to get sued!” Soothing voices of professionals calmly
reassured her that everything was OK, and she finally came back to reality. In
a whimpering voice she apologized profusely. I thought, “You need to meet my
friend, Mr ‘Hope’”.
After correctly
identifying my age to two additional nurses, I was pronounced fit for travel
and wheeled out to a private hospital room. The duty nurse was satisfied that I
knew my birth date correctly, so she wrote her name on the whiteboard on my
wall. Give me that whiteboard, I
thought, and I’ll write my birthday down for everybody else to see. Why
couldn’t they just look at my wristband; it had my name and my birth date on
it. That would save me a lot of trouble.
3. More Hope
My immediate
thoughts were in one place. What did the pathology reveal in my lymph nodes
that were removed? My future lay in the answer to that question. Was the cancer
spread to other organs in my body; if so, what treatment would be required? How
long could I expect to live? It’s the ‘not knowing’ that is most troublesome.
It is better to know bad news than to wait in anticipation of news that could
be bad or good. It’s a long road, I told myself, wherever it leads, I have
those who love me, right beside me. “Don’t despair” came the soft whisper of
hope.
A beautiful,
angelic redhead leaned over the bed and said, “Hey sweetie, they didn’t find
any more cancer”. I tried not to, but my eyes filled with tears from a deep and
satisfying well within my soul.
Phillipians 4:6-7 GWT
6Never worry about anything. But in every situation let God know
what you need in prayers and requests while giving thanks.7Then
God’s peace, which goes beyond anything we can imagine, will guard your
thoughts and emotions through Christ Jesus.
It would be wonderful if we could leap from
one mountain top to the next without going through the connecting valley. Upon
hearing that my cancer had not spread into my sentinel lymph nodes, I was
filled with joy and awe that the immediate threat to my life was checked. The
treatments I would need were still undetermined and would remain so for another
ten days. I was resolved to endure whatever the oncologist recommended, in
beginning this new lifelong struggle to survive. Whatever! And I needed to know
if this dread disease had been genetically passed on from my mother, so my
children and grandchildren could take precautions. We would know soon enough.
My family left the hospital so that I could
attempt to rest and perhaps, be released the next afternoon. As I lay in my
hospital bed, I felt no pain from the mastectomy; only a discomfort from the
drainage tube hanging at my side. Since the initial morphine in the post-ops
area, I had not asked for any pain medication because I was not in pain.
My indignity continued as the hospital gown
beneath me became uncontrollable. I lay with a partial sheet over me, but I
occasionally exposed my privates as I tried to adjust my position. My feet were
tethered by pressure devices attached to my calves to insure blood circulation.
The urinal stared at me with a silent smirk that said “before this is over, we
were going to be good friends.” It was not to be. After the anesthesia, I had
an insatiable thirst. At the same time I had something akin to zero bladder
pressure on my kidneys. I never was able to use the urinal without standing,
and I could not stand unless my feet were unshackled from the pressure devices.
Needless to say, the nurses and technicians were in frequent demand for a few
hours. At nine that evening I was urged to walk if I could, and I did. I walked
with my IV stand up and down the hall for ten minutes. I could not believe that
I was feeling so well.
Flirting with my
nurse seven hours after surgery
At ten-thirty, the night nurse introduced
herself, and after I correctly guessed my birth date, she asked if I needed
anything. My usual arthritic joint pains were hurting so I asked for a couple
of extra strength Tylenol. She said she would order some and bring it to me. At
midnight, I rang and asked if she had the pain medication yet. “No, but I’ll
bring it to you as soon as it gets here from the pharmacy.” At one in the
morning I called again and she finally brought them to me. I rested uneasily
for a couple of hours and then at 3:45 in the morning I felt an intense urgency
to urinate. I wrestled with the pressure devices on my legs and with great
difficulty managed to unwrap them. I could feel a coolness at my side, but I
had an urgent call to answer. I grabbed the IV stand and headed for the toilet,
yanking the electrical plug out of the wall just as I entered the bathroom. A
scene not unlike Tom Hanks relieving himself in
“A League of their Own” insued. As I flushed the toilet, I looked in the
mirror and saw the blood running down from the bandage where the tube was
inserted in my side. I waddled back to the bed and rang the nurse to staunch
the bleeding and replace the bandage. I slept soundly for the next three hours.
At seven, my surgeon came by to check on me.
He looked strangely older than my first impression and he confirmed what my
‘angel of light’ had informed me the afternoon before. “The initial pathology
during the procedure revealed nothing under the microscope, but they will
continue to study it for the next few days.” I had guessed his age as early
thirties, but my brother said that he had practiced in the Army for 11 years,
so he had to be in his early forties. He yanked off my side bandage and then
ripped off my bandage covering the mastectomy. Ouch! He said that they looked
good and he would have the nurse replace the bandages.
At eight in the morning, Johnny Horton wrote
his name on my whiteboard, and after I took a wild guess and correctly
identified my birth date, he replaced my bandages. I had a compulsion to ask if
he would sing a few bars of “The Battle of New Orleans”, but he openly
confessed that he couldn’t sing and the only thing he could play was the radio.
The suction pump on my side wasn’t operating properly after my excursion during
the night, so the doctor said he needed to add another stitch to seal it. After
that I could check out and go home. After a few minutes, he told me to check
out and then come by his office across the street. I bade Johnny Horton goodbye
and took the wheel chair to the front door where my family awaited. The
gentleman who volunteered to wheel me out looked significantly older than me. I
was tempted to ask him if he would like to flip for who pushed and who rode.
At 11:30 my wife and two brothers joined me
for brunch at Mimi’s restaurant. Only twenty-four hours earlier, I had checked
into the hospital for my surgery. I had been filled with anxieties; all those
questions that hung over me like heavy dark clouds. Though not completely
lifted yet, I could see rays of sun streaming through and filling me with
genuine hope. The pathology was still being studied, the genetic testing was
not yet back. But, there was hope, blessed hope, and I was surrounded by family
who love me.
The day after my
surgery with Mike & Ted
My brothers returned home the next day and
then on Friday morning the surgeon called and said, “David, there is no need
for you to come by today, the final results of the pathology came back negative and there is no need for me to
see you until things have healed up a bit.” He said that I should see him in
another week and he would have his staff set up my initial appointment with an
oncologist.
At last, something definitive about the
presence of cancer in my body. “Negative”, how odd that such an uncongenial
word could convey such unequivocal joy. A few more rays of sun were blasting
through those storm clouds. Hope returned in a full suit of body armor.
Cheryl went back to work on Monday and my
thoughts remained cautiously optimistic. It was my birthday and I still
hungered for resolution of all the unanswered questions. While at my desk to
look for the genetic counselor’s phone number, my phone rang and it was the
genetic counselor, Nancy. “Í was just about to call you.” I said “I was hoping
that you might have the analysis back on my DNA.” “As a matter of fact, that’s
why I’m calling you, it came back early.” Our last conversation had been one of
almost certainty that I had mutant genes passed down on my mother’s side. It
was really only a question of which gene, the BRCA1 or BRCA2, or both. “Well
which is it I asked, 1 or 2 or both?. “Neither,” came the reply, “Both came back
as ‘No mutation detected’, with your history, I would have said with certainty
that you were positive, but you are not.” “Wow, I can’t believe it, but that is
wonderful news. I know some kids and grandkids who are going to be happy, I
can’t wait to tell them.” She sent me a copy of the report via email and I sent
it to all the family that was waiting to hear. I silently apologized to Mother
for assuming that she had cursed me with some mutated genes. The only thing
Mother ever passed on to me was courage and love.
My email was succinct:
Dear Loved ones- The genetic testing of
my DNA came back NEGATIVE! No mutations discovered that other family members
may have passed down to me. Open the attachment and read the report and please
pass this on to any other family member who may have questions. Praise God!
There it was again, a negative that
gloriously mushroomed into a giant positive. ‘No mutation detected’; a large
number of dark clouds yielded to brilliant beams of warm and comforting
sunshine. I felt as if I were wrapped up in a blanket in my mother’s arms. My
kids were overjoyed. Life was getting better, but yet there were still
unknowns; what treatments would be required, would I have to endure chemo or
radiation or both. Surely the radiation, but hopefully not the chemo. My friend
Sharon, who recently had similar surgery told me, “As far as treatment goes,
they usually ‘ere on the side of caution.” “No matter”, that frail silhouette of hope, like the shadowy
cowboy images propped up against a tree in someone’s yard, quietly repeated, sotto voce, “Don’t worry”.
The tube came out of my side after eight days
and I now waited for the initial visit with the oncologist. My friend Mike
stopped by the house and visited for over an hour, and it was good to reminisce
about familiar things. While talking with him, I reflected, “I always wondered
how I would feel if told that I had cancer. It’s like a sentence that you are
branded with for the rest of your life.”
“Like a death sentence,” he said; “not
something we want to hear.”
“My mother died from cancer when she was
forty-six years old, so I have always wondered how she carried the burden so
well and I wondered how I would measure up. I started reading in my bible and
the Lord just kept showing me verses that said, ‘Be anxious for nothing.’” Mike
and I have a similar faith and it was comfortable to share my inner thoughts
with him. I have honestly put my trust in God’s providence and He has given me
great peace within. I know that it is far from over, just beginning, really. I
look around and I see and talk with so many survivors; I have come to accept
that I am not a victim, but rather a fellow sojourner on a difficult road. Many
have not survived, but I suspect that none ever gave up yearning for a cure
along the way.
Isaiah
41:9-10 (The Message)
‘You’re my servant, serving on my side. I’ve picked you. I haven’t dropped you.’
Don’t panic. I’m with you. There’s no need to fear for I’m your God. I’ll give you strength. I’ll help you. I’ll hold you steady, keep a firm grip on you.
‘You’re my servant, serving on my side. I’ve picked you. I haven’t dropped you.’
Don’t panic. I’m with you. There’s no need to fear for I’m your God. I’ll give you strength. I’ll help you. I’ll hold you steady, keep a firm grip on you.